The importance of community involvement in the design and development of health policies and programming has been formalised as a key principle within health policy agendas since the 1978 Alma Ata Declaration. A human rights and community empowerment approach has also been promoted as a key enabler for a successful response to the HIV epidemic. Such principles are also the foundation for harm reduction, where the involvement of people who use drugs is described as central to ensuring accessible, effective and responsive harm reduction services.


Despite the often-stated benefits of community involvement for harm reduction, clear and comprehensive evidence for how different forms of community involvement have impact is limited.

Bridging the gaps: a global partnership for research


The Bridging the Gaps II (BTGII) programme supported by the Dutch Ministry of Foreign Affairs aims to support action on community involvement. This unique programme addresses the common challenges faced by sex workers, people who use drugs and lesbian, gay, bisexual and transgender people in terms of human rights violations and accessing much needed HIV and health services. BTGII seeks to address twin priorities: 1) to support the development of existing community involvement processes in contexts where the health and rights of people who use drugs are threatened, and 2) foster a global evidence base for community involvement in contexts of harm reduction.

Community Matters: Lessons from a Bridging the Gaps research programme


All participants without exception regard the fight for the respect, protection and fulfilment of the inalienable human rights of people who use drugs as a defining, fundamental feature of the drug user rights movement (hereafter referred to as ‘the movement’). The movement has promoted self-determination, the notion that “people who use drugs are people” (Angela), and the “upholding [of] human dignity” (Anand). Fundamentally, it is a “peace generating kind of movement” (Brun), born out of necessity, “passion” (Charles) and fighting for social justice for people who use drugs, at times when the scale of human rights violations in many countries has been staggering. Indeed, many participants became involved in movement after they or those close to them had experienced “life-threatening events” (Andria). The movement is about the rights to self-determination over one’s own body, decision-making and consciousness. Furthermore, although participants phrased this more implicitly, the movement has also been concerned with achieving broader economic, social and cultural rights for people who use drugs, such as the right to access appropriate, non-judgemental and non-coercive health services, and safe housing.

The movement is not only about people who use drugs having access to the resources that society can offer, but also society having access to the resources that people who use drugs can offer; indeed, many participants highlighted the positive contribution they have made to their communities and societies, and want people who use drugs to be welcomed as “resources” (Arild) for society rather than “scapegoated” (Jude) for societal problems. The movement is about being at the heart of decision-making, and “meaningful involvement” (Simon) when policies are being made and implemented, in the spirit of ‘Nothing about us, without us.’

A movement fighting criminalisation and prohibition


Participants were unanimous that empowerment of people who use drugs and full respect for their rights can only be achieved by “dismantling prohibition” of drug use and drug possession (Jude). Criminalisation, and the repressive, oppressive laws and policies through which it is enacted, have been and continue to be at the root of all other harms and violations people who use drugs experience. Criminalisation of people who use drugs has been an impediment to engaging with public and community-services and has also created obstacles to finding employment and other opportunities which may help to “resolve” (Shaun) potentially more problematic aspects of drug use. Several participants discussed criminalisation as a “tool of racism” (Andria) and an “imperialist, colonialist” policy (Zoe), the direct consequences of which - police brutality, violence, extortion and arbitrary arrests – have disproportionately affected Black, Brown, indigenous and poorer people who use drugs due to “apartheid-style policing” (Shaun).

Fundamentally, criminalisation is not “science-based” (Hollis), “makes no sense” (Jude), and the associated so-called War on Drugs was seen as “the single most catastrophic global public policy fiasco disaster” (Geoff), “a political construct” which has cost countless lives. Participants spoke of ulterior motives driving the War on Drugs, for example as a “proxy” (Shaun) for repressive governments to achieve their political goals and retain a strong grip on power, or as economic fuel for a “1.5 trillion dollar… mass incarceration” industry in the US (Robert).

Taking back what's ours! A documented history of the movement of people who use drugs

By the International Network of People who Use Drugs (INPUD)

"We live in a very difficult time in human history with many uncertainties and complex problems. The systemic human rights abuses faced by illicit drug users is one problem that can actually be fixed with the rescinding of the global UN conventions that legitimise and perpetuate the “war on people who use drugs.” INPUD is playing a crucial role in making the case for an end to the failed global policy of prohibition and there is much work to be proud of that you can see in this document.

INPUD’s presence in global advocacy forums is especially important. INPUD provides a global voice for a community that has struggled in the face of adversity and oppression to gain access to basic respect let alone access to harm reduction services. The time has come for those who know that prohibition is tantamount to genocide to speak up and help INPUD, user organisations and drug users all around the world.

I especially wish to recommend that people watch the 10 part documentary series “Taking Back What’s Ours! An Oral History of the Movement of People Who Use Drugs”. Throughout the world drug user led advocacy has become a crucial part of the struggle to protect and defend the health and human rights of the drug using community."

Keep up-to-date with drug policy developments by subscribing to the IDPC Monthly Alert.

INPUD Annual Report 2018-2019

Global Drug Survey (GDS) is an independent research organisation based in London. We run the world’s largest drug survey. We use an encrypted online platform to collect anonymous drug use data from across the world. Our mission is to promote honest conversations about drug use and help people use drugs more safely regardless of the legal status of the drug. To date over 900,000 people have taken part in our surveys and we have published over 60 academic papers.

The GDS Special Edition on COVID-19 was developed as part of a global effort to better understand the impact of the pandemic on people’s lives with a specific focus on the use of alcohol and other drugs, mental health and relationships.

The survey ran for 7 weeks (May-June 2020) and was available in 10 languages: Danish, Dutch, English, Finnish, French, German, Hungarian, Italian, Portuguese and Spanish. The survey received 59,969 valid responses. There were 20 countries where we received 100 or more responses, and 10 countries where we received 1000 or more responses. For ease of reporting and to avoid sub-samples with low numbers, we have included only the top 11 countries listed in order of sample size: Germany, France, Ireland, Brazil, Switzerland, Netherlands, New Zealand, United Kingdom, Australia, Austria, and United States (with only the US falling below N=1000). The total global sample size we report on here (total of these 11 countries) is 55,811.

GDS data is from a non-probability sample and thus our findings are not representative of the wider population. The majority of our participants tend to be young, experienced with the use of illicit drugs, and employed or in education. We have included questions that are relevant to marginalised and vulnerable groups of people who use drugs, yet these groups are largely underrepresented online.

Because we ask the same questions in the same way across different regions, our data can be used to highlight local variations and to explore how different groups are coping with COVID-19 and related restrictions. The data further allow us to identify relationships between different behaviors and outcomes, for example between changes in drug use and mental health. In this report we highlight the most noteworthy findings that followed the completion of Special Edition. If you would like to access further analysis or use our data please contact us at adam@globaldrugsurvey.com .

We would like to thank INPUD (International Network of People who Use Drugs) for their support in contributing to the funding of this project and all our research and media partners globally. This survey received ethics approval from University College London.

Global Drug Survey COVID-19 special edition: Key findings report

By Professor Catriona Matheson, Lesley Bon, Louise Bowman, Katy MacLeod, Adrienne Hannah, Anthony Knox

Scottish Drugs Forum was awarded Scottish Government funding to conduct baseline research with particular at-risk populations and frontline services to identify specific risks in terms of drug use and sexual health, treatment needs, information needs and what workers need to know in order to support these populations effectively. This would inform the development of information and training resources and programmes, ensuring that the workforce and service providers working with the three target groups are fully trained and equipped to support service users with their sexual health, blood borne viruses and harm reduction needs. The at-risk populations were:

Men who have sex with men (MSM) involved in Chemsex,

People who use image and performance enhancing drugs (IPEDs),

People (men and women) involved in transactional sex who use drugs.

It is key that these different populations have their individual risk behaviours and information needs understood and addressed rather than applying universal prevention/harm reduction approaches used when addressing substance use issues. Equally it is important that services are fully equipped, skilled and confident when responding to these target groups and engaging them in prevention/harm reduction.

Chemsex has been a growing and emerging trend within the MSM population over the last 5-10 years. Chemsex involves the use of psychoactive drugs, commonly referred to as “chems”. Mephedrone, gamma hydroxybutyrate/gamma butyrolactone (GHB/GBL) and methamphetamine are the most commonly used substances (Bourne et al, 2014). Some of these men inject the drugs intravenously, which they refer to as ‘slamming’. Chems are often used during sexual activity to enhance pleasure and reduce inhibitions. This can result in increased risk taking around sex and drug use, including condomless sex, which can lead to higher rates of STIs and BBVs (Ottaway, Finnerty, Amlani et al., 2017; Page & Nelson, 2016). According to the Scottish Government BBV framework, young people and MSM are identified as being the highest at-risk groups for STI transmission and MSM and people who inject drugs have the highest risk of HIV in Scotland (Scottish Government, 2015).

Recent IPEDs research has identified that people who use IPEDs report a broad range of illicit and prescription drugs taken alongside IPEDs which present a variety of possible health risks and may impact on additional risk-taking behaviours. The uptake of BBV testing and vaccination by people who use IPEDs is reported as low, although reasons for this are unclear. (Begley et al, 2017) Previous research with people who use IPEDs found they relied on other IPED users for information about drugs, which was often inaccurate. They also often had their drugs injected by other IPED users (Santos & Coomber, 2017). Some risk behaviours have already been identified such as using small narrow bore needles that can break off in muscle tissue (Dunn et al, 2014). Furthermore, in the UK tensions have been identified between service providers and IPED users as a result of different perspectives of potential risk behaviours and interventions (Kimergard & McVeigh, 2014). In addition to injecting risk taking, in terms of sexual health, people who use IPEDs often report high rates of sexual activity but low levels of condom use which would suggest a significant risk factor for STIs and BBVs (Begley et al, 2017).

People involved in transactional sex who use drugs may experience a range of challenges including stigma, exploitation and trauma which have an impact on risk taking behaviours relating to drug use and sex. These challenges may affect engagement with support services. There is evidence globally that sexual health services may focus on MSM and the general population whilst vulnerable female groups such as those involved in transactional sex are under-provided for (Pinkham & Sepruch, 2008). There are known risks for people involved in transactional sex such as the transmission of sexually transmitted infections, risks associated with injecting drug use (BBV, injection injury, overdose etc), and violence (Spice, 2007). However it is surprising how little research has been conducted recently which is specific to the Scottish population and considers changes in drug use (e.g. new psychoactive substances) as well as the rise in drug related deaths in women (Tweed et al, 2018).

As part of the funding agreement SDF, working with an experienced health service researcher (CoI, CM), undertook research across Scotland with each of these groups, to inform the content of a training programme for staff working with these populations. Although these three groups are quite distinct the information being sought, and the purpose of seeking that information is the same. This report describes the data collection and findings of interviews with each target group as well as focus groups with service providers. It then identifies key issues for training and service development.

Understanding the sexual health and blood borne virus risk behaviours of defined 'at risk' groups to inform a service training programme

Prior reports in this series, on the situation in Moldova and Belarus, are available here.

The phenomenon of new psychoactive substances (NPS) started decades ago with the growth and production of drugs that replicate the effects of controlled drugs (such as amphetamines, cocaine, cannabis and heroin) but avoid legislative control based on different chemical structures.

In recent years, the increasing use of NPS has led to new threats for health of people who use drugs (PWUD) – including overdose, psychotic reactions, high HIV risks due to multiple injections and increased number of sexual contacts. However, in many countries service providers such as harm reduction, drug treatment programs and ambulance services are not prepared to provide PWUD with quality support and counselling to reduce risks of NPS.

In the Central and Eastern Europe and Central Asia (CEECA) region the situation with NPS is truly alarming and has become one of the major challenges for the national public health systems, local NGOs, communities PWUD.

EHRA in partnership with School of Law, Swansea University undertook the project “New Psychoactive Substance Use in Moldova, Belarus, Kazakhstan, Kyrgyzstan, Georgia, and Serbia” to generate a more accurate picture of the use of new psychoactive substances (NPS) and to assess harm reduction and law enforcement responses to the emerging issues related to use of NPS. Results from this project will supplement scarce international data on the use of NPS in these countries, present a more accurate picture of their use, and provide information to national civil society organizations (CSOs) for political advocacy.

New psychoactive substance use in Georgia, Kazakhstan, Kyrgyzstan and Serbia

In their Global State of Harm Reduction: 2019 updates, HRI note that the spread of harm reduction services is still stalling globally in continuation of a trend observed since 2012. The 2018 Global State of Harm Reduction 2018 briefing, highlights that although women are estimated to account for one third people who use drugs globally and are consistently reported to have less access to harm reduction services and to be at higher risk of HIV and hepatitis C infection, robust data on this subject is scarce, and research on drug use and related health issues rarely produces information about women. While tools exist to enable harm reduction services to institute a gender lens and gender mainstreaming in their programming in order to improve relevance and reach to women who use drugs, services that have introduced such approaches are thin on the ground. Where they do exist, there is not necessarily scope to document and promote experience. In order to leverage greater accountability from governments that have endorsed UN guidelines and resolutions around provision of services for women who use drugs, it is important to document and promote such services where they do exist, so that models of replication can be resourced and established at other harm reduction programmes, while pressure builds to reverse the stalling of actions that improve respectful access to health for women who use drugs. With this in mind, WHRIN undertook a survey, in order to attempt a ‘mapping’ of women friendly services around the world.

Regional focal points identified among membership worked with WHRIN coordinator to create survey participant lists targeting two well networked women who use drugs and two additional key informants (KI) with a good understanding of harm reduction services in their country. Per country (or state/province in Canada, US and Australia). Separate short survey monkeys were created per region, applying the same 7 questions aimed to identify key barriers to service access and to ‘map’ harm reduction services designed for women who use drugs.

In total, 15 people responded to the survey, and were either women who use drugs (WUD) or other key informants. Participants were based in the following countries; Greece, Netherlands, Italy, Spain, Sweden, England, Portugal, Germany. The majority of the respondents (80%) identified as WUD.

Mapping harm reduction services for women who use drugs: Western Europe region

By Vicki J. Hanson, Pien Metaal and Dania Putri

Following its first-ever critical review of cannabis, in January 2019 the World Health Organization (WHO) issued a collection of formal recommendations to reschedule cannabis and cannabis-related substances. 53 member states of the Commission on Narcotic Drugs (CND), two of which are Caribbean states, are set to vote on these recommendations in December 2020.

Among the WHO’s recommendations, two in particular appear to be the most urgent and relevant for Caribbean countries: namely recommendation 5.1 (concerning the acknowledgment of cannabis’ medicinal usefulness) and recommendation 5.4 (concerning the need to remove the term ‘extracts and tinctures of cannabis’ from the 1961 Convention). Supporting these two recommendations presents an opportunity for Caribbean governments and civil society to decolonise drug control approaches in the region, as well as to strengthen the international legal basis for emerging medicinal cannabis programmes in several Caribbean countries. Also, it provides the historical opportunity to gain global recognition for two deeply rooted and unique traditions: the use of cannabis as sacrament in religious Rastafarian practise, and its use as traditional medicine, particularly but not exclusively by the Maroon community.

In this regard, the recommended principle ‘asks’ for Caribbean advocates and policy makers are to:

Support the most urgent recommendations 5.1 and 5.4.

Actively engage with CND members, in particular Jamaica, the only English-speaking Caribbean member of CND, emphasising the urgent nature of recommendations 5.1 and 5.4.

Actively engage in relevant meetings and processes at the CND level, as well as emphasising the need for further follow-ups to the critical review.

Actively engage and encourage support from other Caribbean governments and other key stakeholders such as CARICOM and OECS, as well relevant civil society organisations, experts, and affected communities.

WHO cannabis rescheduling and its relevance for the Caribbean

2019 was a big year for drug policy globally, and especially in Africa. It marked the expiration of the targets set out in the 2009 United Nations (UN) Political Declaration and Plan of Action to ‘eliminate or reduce significantly and measurably’ illicit drug cultivation, trafficking, consumption and money laundering. Yet, as the world’s governments gathered for a High-Level Ministerial Segment of the UN Commission on Narcotic Drugs (CND) in March 2019, it was abundantly clear that these targets had been missed by a staggering margin. This briefing paper aims to outline the ways in which African non-governmental organisations (NGOs) can build on recent developments to enhance their drug policy advocacy work at the international, regional and national levels.

Held only three years after the 2016 UN General Assembly Special Session (UNGASS) on drugs, the UN High Level Ministerial Segment was a critical moment for member states to define the next decade of UN drug policy. Consensus was eventually reached in the form of the 2019 Ministerial Declaration on Strengthening our actions and the national, regional and international levels to accelerate the implementation of our joint commitments to address and counter the world drug problem. A new 10-year timeline running until 2029 was also agreed, with a midterm review scheduled for 2024. At the same time, the Chief Executives of all 31 UN agencies have signed on to a progressive Common position supporting the implementation of the international drug control policy through effective inter-agency collaboration’ – which provides strong commitment to balanced drug policies based on health, human rights and sustainable development.

The last few years have been significant for African drug policies as well. In 2019, a new African Union (AU) Plan of Action and Implementation Matrix on drugs was adopted at the AU Third Specialised Technical Committee on Health, Population and Drug Control (STC-HPDC-3) in Cairo, Egypt. This meeting was well attended by African civil society. For the first time, the words ‘harm reduction’ were explicitly included alongside ‘alternatives to punishment’, civil society engagement, the review of national drug laws, and many other welcome elements (the Plan even includes support for ‘local production of controlled substances and plants for scientific and medical use, in line with the international drug conventions’). The AU continues to demonstrate strong commitment to addressing the drug situation in the region by facilitating the availability of a wide range of evidence-based harm reduction and treatment options.

Elsewhere in Africa, numerous developments have been documented: moves towards the decriminalisation of cannabis for private use in countries such as South Africa; the start of harm reduction programmes in countries such as Nigeria and Mozambique; the tabling of new progressive drug laws and bills in countries such as Ghana; the introduction of programmes in Cote D’Ivoire and Sierra Leone; and the scale-up of existing harm reduction programmes in Senegal – to name just a few.

Building on developments at the international and regional level, 2019 also resulted in the development of the African Civil Society Common Position on Drugs. The Common Position seeks to incorporate the perspectives and guide the work of a wide range of NGOs from across the African continent, and to support, shape and guide civil society and governmental responses over the coming years.

This briefing paper is aimed at civil society organisations and allies across Africa, and serves as a guide on international advocacy, regional advocacy and how to utilise these to advance national advocacy. The paper also proposes advocacy priorities and approaches for 2020 and beyond – divided into three sections for international, regional and national-level work. It is designed to complement the more detailed global advocacy note published by IDPC after the UN High Level Ministerial Segment itself.

‘2020 vision’: Advocating for drug policy reform in Africa

As of 2018, 37.9 million people globally were living with HIV. 74.9 million people had become infected with HIV since the start of the epidemic and 32 million people had died from AIDS-related illnesses. In 2018 alone, 770,000 people died from AIDS-related illnesses, while 1.7 million people became newly infected with HIV. Reductions in new infections are stalling and progress is significantly off track from the goal of only 500,000 people newly infected with HIV by 2020.

Civil society efforts have been critical to overcoming many of the major challenges in the AIDS response. Networks of people living with HIV and AIDS deliver life-changing services to those most affected and provide support for adherence to treatment, prevention and other essential health services.

The involvement of civil society has also been crucial in successfully advocating for sustainable financial resources, improving HIV and AIDS programming, and advancing human rights, as seen in countries such as Kenya, Ethiopia and Uganda, according to the International Centre for Notfor-Profit Law.

But these achievements are at risk. Globally, we are witnessing the harmful effects of rising populism and ultra-conservatism on civil society space, especially for organisations and networks led by stigmatised and marginalised communities.

The CIVICUS Monitor, a cutting-edge research tool developed within civil society, which provides reliable, current data on the state of civil society freedoms in all countries, shows a precipitous decline in civic space, with only three per cent of the world’s population living in countries with open civic space. As noted by the United Nations Office of the High Commissioner for Human Rights, civil society actors are facing opposition across the world, and the space for marginalised groups is increasingly shrinking.

Activism and AIDS: Protect civil society's space to end the epidemic

The DPA proposal for decriminalization, the Drug Policy Reform Act, takes these first steps in dismantling the punitive apparatus built up over the past 50 years. To begin refocusing federal drug policies, the legislation shifts the authority for classifying and regulating controlled substances from the Drug Enforcement Administration (DEA) to the National Institutes of Health (NIH) within the Department of Health and Human Services (HHS).

The legislation eliminates criminal penalties for all possession of personal-use quantities of controlled substances, and shifts federal resources away from futile enforcement strategies to supportive initiatives to protect the public health and safety.

Eliminates the inequitable and harsh sentencing constructs, such as mandatory minimums drug conspiracy offenses, that have significantly led to mass incarceration;

Provides for decarceration and expungement of records for those imprisoned under the current system;

Eliminates collateral consequences of drug convictions, including denial of public benefits and educational loans, for individuals who have been convicted of drug offenses; and,

Abolishes the enforcement agencies that have been primarily responsible for creating the harmful enforcement strategies of the past.

Dismantling the federal drug war: A comprehensive drug decriminalization framework

This assessment has been initiated by the Eurasian Harm Reduction Association (EHRA) to assess the progress in reaching sustainability of the opioid agonist therapy (OAT) programme in the Republic of Belarus in the context of transition from donor support to domestic funding. The sustainability assessment of the OAT programme in the Republic of Belarus in 2020 was implemented with the funding provided through the technical support mechanism (TSM) of the Joint United Nations Programme on HIV/AIDS (UNAIDS).

This assessment was carried out in Belarus in February – April 2020. It covers the current situation, progress made, risks and opportunities to ensure the sustainability of OAT programs in the Republic of Belarus, with a focus on programmatic aspects and a focus on the following three areas: politics and management, finance and resources, and services. The assessment includes a review section, analysis of progress, obstacles and opportunities in each of the areas, as well as general conclusions and recommendations for government ministries and departments, national coordinating bodies, practitioners, civil society, technical partners and donors. The evaluation also includes relevant recommendations on adaptation of the OAT programs in the context of the COVID-19 pandemic.

Аssessment of the sustainability of the opioid agonist therapy programme in the context of transition from donor support to domestic funding in Belarus